XLH resources

The resources below have been provided for you and your practice.

XLH Information websites

>European Society for Paediatric Endocrinology

>European Calcified Tissue Society

>European Society for Paediatric Nephrology

Patient Organisations

XLH Alliance

Founded in 2018, the XLH Alliance is an alliance of patient groups for individuals affected by X-linked hypophosphatemia and related disorders. The XLH Alliance will direct you to organisations in your country that can provide information, education and a community to join that could provide support to you and your family.
www.xlhalliance.org

Videos

>Mechanism of disease

Downloadable resources

Coming Soon

XLH Link

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