XLH resources

The resources below have been provided for you and your practice.

Downloadable resources

>Assessment algorithm for paediatric patients with suspected XLH

>Red flag signs and symptoms for XLH in paediatric patients

Videos

> New clinical practice recommendations for diagnosis and management of XLH

> Management of XLH - Advancing understanding from diagnosis to treatment

> Mechanism of disease

Patient Organisations

XLH Alliance

Founded in 2018, the XLH Alliance is an alliance of patient groups for individuals affected by X-linked hypophosphataemia and related disorders. The XLH Alliance will direct you to organisations in your country that can provide information, education and a community to join that could provide support to you and your family.
www.xlhalliance.org

XLH Information websites

>European Society for Paediatric Endocrinology

>European Calcified Tissue Society

>European Society for Paediatric Nephrology

XLH Link

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